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My sister phoned last night. My mother is in the hospital in California. She fell and broke two ribs. They found a serious heart arhythmia and did some tests. She has a very restricted valve on her aorta. Now we have to decide whether or not she should have heart surgery and get an artificial valve. We're are trying to balance risk versus possible improvement in quality of life.

The morbidity risk of the operation is fairly high for someone my mother's age - around 25%. There is added risk because my mother is a diabetic, has had several strokes, and because she doesn't handle general anesthesia very well. Other risks include strokes, infection, damage to her heart, plus there was probably something else I don't remember.

The possible improvements to quality of life are that some of her headaches may go away; she won't get out of breath as quickly from exertion; she will probably be more alert; it should stop her dizzy spells; and it might improve her short term memory (which is practically non-existant now) a little.

If we decide that she should have the surgery, they will do an angiogram and see if she has any other heart problems that should be repaired surgically. Then they could do that at the same time as they replace the valve. But, then the risk goes up again. If she doesn't have the surgery, the valve will continue to deteriorate. It seems that it is hardened and doesn't open up properly. The doctor would only tell me that this was age related. The faulty valve restricts blood flow which causes dizziness (probably the reason she fell), headaches, and doesn't help her mental condition.

She has headaches that cause her entire face to grimace. They only last a short while. While she was hooked up to the heart monitor, they noticed that the headaches occurred at the same time as her heart would stop beating for two to four seconds. The doctor was confident that they can manage the headaches with medication, if we decide not to go ahead with the surgery. He said that she hadn't had that much today, with pain medication. But, the pain medication that they have tried so far is making her woozy. I tried to talk with her on the phone today. I couldn't understand anything that she said and I'm not sure she knew it was me. So, that doesn't sound like an ideal solution.

My sister will be getting a second opinion. At the moment we are both leaning towards not allowing the surgery.

That's why I'm not posting comments to journal entries. I've just got too much on my mind.

Date: 2004-03-05 06:53 am (UTC)
From: [identity profile] artistry.livejournal.com
That is a hard decision to have to make. Is your mother able to participate at all? Do you know what she would want to do? That's the only way my sister and I were able to make decisions about our father ... he had given us clear instructions about what kinds of treatment he wanted and we honored his wishes, even though every instinct told us to try everything and anything to make him better.

Date: 2004-03-05 04:12 pm (UTC)
From: [identity profile] taxlady.livejournal.com
She hasn't given any instructions. Can she participate? She's pretty confused, so, not in a rational way. Her main reaction is fear and fear of dying. I would love for her to have surgery that would improve her quality of life and extend her life, but I think the risk is too high.

Thanks for your thoughts.

Date: 2004-03-05 01:35 pm (UTC)
From: [identity profile] electricland.livejournal.com
I'm so sorry to hear about this. What a scary time for you and your family. I have nothing useful to suggest, but you're in my thoughts. All the best.

Date: 2004-03-05 04:08 pm (UTC)
From: [identity profile] taxlady.livejournal.com
Thank you.

Date: 2004-03-05 06:32 pm (UTC)
From: [identity profile] kishiriadgr.livejournal.com
Those are hard choices. Are you going to have to come out to the Waste Coast because of it?

Big hugs and Supportive Thoughts.

Date: 2004-03-07 04:02 am (UTC)
From: [identity profile] taxlady.livejournal.com
I hope not. It's tax season. My sister and I have been talking on the phone and I'm completely comfortable with my sister making the final decisions. She likes my mother better than I do.

Thanks for the hugs, etc.

Date: 2004-03-07 05:58 am (UTC)
From: [identity profile] kishiriadgr.livejournal.com
Tax season....right. I'm glad you'll be able to stay in Montreal, then.

Date: 2004-03-06 04:54 am (UTC)
From: [identity profile] jelebean.livejournal.com
I too, have no advice but send my hugs and support because I know your whole heart is behind it.
Whatever you decide I hope that you will have peace with it, I would hate for you to go on forever guilty. Which I know is going to be pretty hard.
Good Luck and best wishes.

Date: 2004-03-07 04:06 am (UTC)
From: [identity profile] taxlady.livejournal.com
Thanks for the good wishes.

I'm not really feeling any guilt, just hoping to help make the best decision. The decision is getting easier, since my sister spoke to someone whose mother had that operation. It took her six months to heal and she was younger and in better health than my mother. The six months healing period was full of pain and stress and panic attacks and mood swings that the woman had not had before.

My sister is going to find out if the procedure has improved.

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